I've had pn for around 10 years and it's gradually progressed from tingling in my feet and legs to burning pain, 6-9 on the pain scale. I've been blessed to have good care, doctors who explain things, good neurologists, PCP, pain specialist, orthopedists, PT, cardiologist, ophthalmologist, ENT, gastroenterologist, mental health professionals, swallow therapist, urologist - I might have missed some.

At the Oregon university hospital sfpn was verified and was told I'm in the early stage of AN, which helped me understand what's been going on with the various things that have sent me to all of the doctors on my list. I'm 69, so I expect to have ailments typical for getting older, but it can be hard to distinguish between the effects of aging and SFPN/AN.

Issues that could be chalked up to neuropathy (but I don't know): diplopia, dysphagia, reflux, esophageal dysmotility, uncoordinated motion in the back of my tongue, numbness in my face and fingers, legs and feet, sudden urgent urinary incontinence, sudden urgent bowel movements, uncontrolled movements of my fingers and other places, off and on blurred vision, memory and mental acuity slowing, random loss of muscle in my knee causing me to fall, staggering down the hall, knocking photos off the wall, feeling full after eating a small percentage of the meal, tinnitus, losing my senses of smell and taste, feeling like a zombie, ED, and burning pain moving upward from the bottom of my feet - now involves my ankles.

This is not how I lived the first 50 years of my life. Never took any medication except for Ibuprofen, always healthy, rarely had a cold or the flu. I feel like I'm falling apart from head to toe, quite literally.
And I continue to wonder how much is attributable to neuropathy. All the doctors say is that it might be. At least they don't tell me it's all in my head.

Jim