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Who else has Autonomic Neuropathy?

Neuropathy | Last Active: Jan 25, 2023 | Replies (105)

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@jager5210

A friend of mine was in a horrible auto accident 15 years ago. The accident was not her fault & she was in a company car. She hired a lawyer and after a 5 year legal battle with her company and workman's comp, she finally got disability. This is an arduous road but perhaps it may relieve your financial worries.

I had a 'heart attack' which resulted in hospitalization. A cardiologist later diagnosed it as something else. Just this Sunday I had the same painful experience. If I didn't have my dog to worry about I would have gone to the hospital. My flesh was burning from head to foot, my stomach and gut have been a mess for weeks, and my chest was very tight with the feeling like I was being squeezed in both armpits. The horrendous fatigue at times has been so painful that the only thing I could do was lay down but in doing so the whole body ache was so great I could not sleep. So how did you get a diagnosis of autonomic neuropathy? Was there some kind of testing involved? Although labeling does not lead to treatment if a remedy does not exist, it is at least a first step. I have the swallowing issues, the cut tongue experience, the dry mouth, numbing of lips and mouth, burning eyes, blurred vision coming and going, semi-tumescence off and on all day, and never-ending gut issues ranging from nausea, cramping, etc.

I hope you find relief soon and share it with the board. Has anyone else been diagnosed with autonomic neuropathy?

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@jager5210 - I'm sure this question is redundant, but have you been tested for MS and/or other autoimmune diseases? What type of doctors have you seen? Have you been seen by a rheumatologist?