Sensory PERIPHERAL neuropathy (SPN):

20+/- yrs. R/L feet
1+ yr. R/L hands
I am not diabetic
Nothing on the internet addresses this
18 mos. R foot swollen, red, more pain., skin changes color light brown/texture dry/leathery. Not vascular. Misdiagnosed as stress fracture. Anyone have this? Neurologist said PN. The nerves are so damaged that some of them are dying.

Recently diagnosed with AUTONOMIC neuropathy (AN) as well:

Been seeing SEPARATE SPECIALISTS for various organ dysfunction until recently when I was Dx with AN. Symptoms not new, just blamed on different/unrelated causes.

GI, UPPER ~ MULTIPLE:
3 decades,Progressed from REFLUX to hiatal hernia, gastropathy, stenosis of the duodenum,10+ yrs. ago gastroparesis. Coughed 24/7 for 10 mos. until Jan. 2017, fundoplication (stomach wrap). Stopped the cough but not the excessive saliva. Progressively worse problems swallowing sev. yrs. Gastroenterologist said only help is gastric pacemaker. No thanks!

BLADDER:
25 yrs. progressively worsening until now intermittent days of >30 bladder spasms/day. Anti-spasm bladder Rx hardly helps now. Moffit recommends a machine in my bladder. No thanks. Local urologist says permanent cath. Previous Dx = neurogenic bladder. Now - AN

SYNCOPE:
2 yrs. blacked out and hit my head several x /day = wheelchair + helmet = Mayo 8/16 after I passed out through a glass-top table. Due to severe insomnia, Mayo Clinic said “micro-sleep.” Stopped the last 2 yrs. Now experiencing intermittent syncope (“near-fainting”). 40-50 times in 1 day last week. Syncope = AN

DIZZINESS/IMBALANCE/STAGGERING:
24/7 with standing/walking. Previous Dx ataxia. Now = AN.

GI, LOWER:
2 yrs. intermittent BOWEL incontinence 2-10 x/d for days, then 0 for days/wks./mos. Previous Dx = pinched L5 + Sciatica R/L sides. Now = AN

SEVERE INSOMNIA

TREATMENT OPTION(s):
My neurologist said my only option is medical marijuana. I’m waiting on the State to renew my license. Mayo Clinic told me not to use it because “it’s a narcotic and you don’t need it” to deal with chronic pain. Really? I have 30 other chronic diseases/conditions.

ANYONE ELSE HAVE SIMILAR SYMPTOMS? WHAT HELPED? If the AN affects my heart, it could be fatal. If the PN and swollen foot worsens, I could be an amputee. The nerves are dying.

Thank you. Peggy 💖😊

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