← Return to Coronary Artery Ectasia (CAE): Want to hear from others

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@dpframing

Hey Vicks. Same boat -severe CAE in all 4. My arteries in my angiogram looked liked 4 fat lumpy worms. I am totally dedicated to living a healthy life now. I'm dropping 35 lbs, and brisk walking without overdoing is good for the problem. Medications are a must (Plavix, aspirin, a statin, BP meds) for the rest of our lives. And if you're like me, a change to your life itself, with less stress , would help. The doc said it is doable to live with this condition, and to maybe even have a slight reversal of the condition.

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Replies to "Hey Vicks. Same boat -severe CAE in all 4. My arteries in my angiogram looked liked..."

Thanks for your Reply.....yes seems standard with Cardiologists to make it manageable for the rest of our life....without knowing much about it...really ...ya not happy with this prognosis...they really don’t know if it’s spreads or is it treatable....they say it’s rare CAE but how many people have it out there and don’t know....I certainly don’t know how I got it...but that being said there has to be other heart surgeons and cardiologists and research departments that have actuallydealt with this....I’m very proactive...and really believe it’s the major culprit cronic Inflammation ....upon which I just finished seeing a top Rheumatologist who has put me on inflammation drugs..Methotrexate and folic acid...to be followed by another injection of xxxx if blood work dictates...and then retesting to see if any change...It’s Amazing that more isn’t out there in the journals but will continue the journey....trying to eliminate Stress...😊just a note I’m also on a powder supplement called Cardioflex and Q10/100
Best of luck....continue the Healthy lifestyle...take it easy with the beer..haha 🙏Gary