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Teresa, Volunteer Mentor (@hopeful33250)

NETs Becomes Newsworthy

Neuroendocrine Tumors (NETs) | Last Active: Aug 20, 2018 | Replies (6)

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@hopeful33250

Our friends "Down Under" (Melbourne) are discussing NETs with great detail! Here is a news program where Aretha Franklin and NETs are discussed:
https://www.facebook.com/unicornfoundation/videos/2107125839339819/
Teresa

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Replies to "Our friends "Down Under" (Melbourne) are discussing NETs with great detail! Here is a news program..."

When I was diagnosed 10 years ago, there was little information to be found on NET. My GI doctor who ordered the liver biopsy told me to research it on the internet. What I found and stuck in my head for a few years is that I would most likely live only another 4-5 years. Not only was that frightening but inaccurate information. Today, so much has been done to advance treatment of this disease. New meds, procedures, tests, support groups, blogs, NET communities and more. I was the first NET patient for both my primary care doctor and cardiologist and through me they are now aware of NETs. I look forward to increased awareness and accurate information published about this disease.

@tresjur Thank you for sharing your story!

You have been an educator and a trailblazer for your medical team. I am sure that your doctors are more informed and aware professionals because of your input!

Teresa

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