@fiesty76 for the first time, my nephrologist said a six month recheck, two weeks ago. Since 2015, it has always been every 3 months, with my current dr being the fourth one in those 5 + yrs. [one left practice, one I substituted since he sent a PA to see me instead of himself, one I left behind when i moved] I get labs done 2 weeks ahead, since it takes a week before the lab will release results to me, and I can have a copy when I see the dr.

@tracilynn0418 Confidence in your medical team is critical to your well-being, physical and emotional! You have found that out. I will be curious to hear what they say about transplant prior to dialysis. Have you started looking for a donor?
Ginger

Yes I always do labs at least a week ahead depending on which he wants done because there is one that takes longer to receive back I've started doing the 24 hour urine one more than a week in advance because when I cut it too close because it gets FedEx's to a lab he didn't have the results one time for my appointment. Luckily he's pretty good and leaves indepth voicemails to me so I can understand everything he always gives me a copy of all my labs since I started seeing him so I have started a binder so I can always reference back to them to see how everything has changed from visit to visit. As for donors no I have not necessarily really looked but I do have a few people that I know or have worked with that have said they would be willing to but I very well know that could change because it's a big ask of someone to do plus they also have to clear an evaluation also, so I know that. Though my one friend that really got me started on this and the hope of living with so much sadness at once and offered to be a donor and new alot about the whole process. Now I do know that the chances of the being a match is not certain and of course back when I was sick I cannot remember what blood type I am when they checked me because I needed a transfusion. But I have hope, Now not sure what transplant center I would use. I do know of the one closest to me is Omaha,NE other than that and knowing of the mayo I am not knowledgeable of any others. So I know there's still More to learn but hey maybe by the time I figure it out they will have more technology created lol but I do believe that dialysis being not needed would be a hurt for some people , so I do believe in that is why we aren't as advanced as we could be they depend on us needing all these things for the rest of our lives which as a human makes me said because I have so much compassion and don't think any of us deserve to suffer if there's a way to prevent it by all means. Ok end of rant. Hope you all are well!

Hey the last time I saw a dietitian was when I first started having recurrent kidney stones as a teenager my pediatrician referred me there so I have learned quite a bit about everything that way though she really didn't know much back then of how to help me really but we looked at.over eating healthy things in general. Yes it has been difficult during these times to eat exactly right! Because I have to consider the things that cause my stones then I think kidney disease diet. Everyone looks at me like I'm weird while I'm at work and don't eat much lunch and just move it around on plate. I often what will happen because of me being on potassium citrate for the stones because eventually I know I won't be able to keep my levels in Normal range with taking that. So that is another question id like to ask him next time I go. I believe I did download and went through the stuff you had posted previously when I was first diagnosed with it and was very good and helpful. Sometimes I wish they would just let me have a feeding tube so I wouldn't have to worry about what I eat all the time but I know that's not a realistic request 😂