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Replies to "I too have ap·prox·i·mate·ly started around 10 at that point it was missed diagnosed til I..."
Kidney & Bladder | Last Active: Jul 8, 2022 | Replies (124)
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I too have ap·prox·i·mate·ly started around 10 at that point it was missed diagnosed til I was 15 and in er for over 12 hours because they couldn't figure out what was wrong first they thought bowel obstruction then finally my answer of kidney stone was discharged from we and sent over to clinic and waited in horrible pain and got to have my first surgery,of all time and was emergency because parents were in another city at work I was alone scariest part of my teen years and now I've been having them all time I am 34 now everything has caused me to have atrophic left kidney and currently in stage 3 chronic kidney disease since at least January 2019 so it's added new stress but trying to live life to it's fullest
Replies to "I too have ap·prox·i·mate·ly started around 10 at that point it was missed diagnosed til I..."
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@tracilynn0418 Hello, and thank you for joining us here at Mayo Connect! How did you find us? You no doubt have a lot of experience to share with us, learning to live with recurrent kidney stones. Have they ever researched what type of stones they are, that is, what the stones consist of? I know there are several types, calcium phosphate, calcium oxylate, uric acid, struvite. If they know what type, it may be of use to your medical team for treatment, especially if they are recurring.
My dad was prone to kidney stones, and had lithotripsy several times before his spine surgery. From then on, he could only do a medication. My sister had lithotripsy once for a stone. Several decades ago I had one stone, but passed it.
Having Stage 3 kidney disease usually means some form of medication, dietary restrictions, and a careful watch on bloodwork every 3months or so. Your atrophic kidney highlights the need to be careful. If you are comfortable, would you share what you are doing to manage your disease, and tell us how we can support you? We are not medical professionals, but will share support and experiences!
Ginger