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Kidney stones

Kidney & Bladder | Last Active: Jul 8, 2022 | Replies (124)

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@kamama94

@jakedduck1, I am so sorry, Leonard! I wondered where you were.

Several years ago sonograms and a CT scan showed some fairly large stones in my left kidney. I haven't experienced what you just did but I did have a large stone we all thought had passed because my symptoms resolved.

As a result, I made the decision not to follow up with another sonogram or scan due to financial constraints and since I had no further symptoms my docs went along with this.

But what we now think actually happened was that the stone moved enough to completely block my left kidney so when the pain came back we thought it was another stone.

Once again the symptoms resolved and I experienced only occasional discomfort.

Four years later after a bout of 'flu and pneumonia labs showed a fairly sudden drop in eGFR and elevated BUN and creatinine levels and an MRI showed a completely blocked and atrophied left kidney. That's how I got into Stage IV CKD, though diet and fluids and rest improved the situation to Stage III-b.

I'm telling you all this because at this point, for me lithotripsy won't change anything and my neph watches me closely to make sure the stone doesn't do anything mean to me. But for you, lithotripsy might help. IDK if you already had lithotripsy and it didn't work or if it hasn't been tried yet but I do know a second lithotripsy has helped my brother with his kidney stones and a friend as well, who had litho and stents and whose stones eventually were passed like @retiredteacher was talking about in her post. I also know that stones can disintegrate on their own then re-form, they can become several little ones, they can dissolve, or they can accrete.

Years ago my brother had major surgery to remove a stuck stone because lithotripsy didn't exist yet. Has your doctor suggested surgery? Or is your medical team planning to adopt a wait and see strategy n case the stone shrinks?

Whatever happens, whatever they and you decide, please know I'll be thinking of you and sending you positive vibes!

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Replies to "@jakedduck1, I am so sorry, Leonard! I wondered where you were. Several years ago sonograms and..."

@kamama94
First of all I’d like to offer you an apology for not getting back to you.
I was told they couldn’t do lithotripsy because of the location and size. They claimed other structures could be damaged. After the stint was placed I couldn’t urinate so was catheterized every 6 hours. The fun just doesn’t stop. Meds helped but urinating is still very painful. After the stint was placed my numbers improved so no permanent damage. I’m very lucky. On Aug 14 they are suppose to decide how to get it out.
Jake