@jakedduck1 Hello, I am Carol a Volunteer Mentor in the Diabetes/Endocrine Group. I have Diabetes 2. I also have had kidney stones for as long as I can remember. I can certainly sympathize with you and your massive stone situation. Five years ago I had a severe attack of a huge stone in my right kidney. It had been there for years and the dr. said it was too large to exit and get into the tube. I guess, however, it must have lost enough of its size that it did get into the tube and caused as much pain as birthing my only child decades ago. I was sent immediately to my urologist. He put stents in to bypass the tube; they remained for six weeks while the tube's swelling and irritations healed. After that time the urologist used laser surgery to blast the stone into pieces and flush out the tube. Stents were put back in after the surgery for six more weeks for the tube to heal. The laser blast was out patient, and I was able to come home to heal and for any pieces of the stone to be flushed out. After six more weeks, the stents were removed and all was well. I have never had a urologist tell me that a stone can't be removed, especially with the laser. It blasts the stone and it is in little pieces. I have calcium stones. My husband also has stones; his are uric acid stones. Has your urologist mentioned a laser procedure? I don't know, but maybe all uros can't do laser; I'd check it out. It was a blessing and the blast was no problem, but the stents were awful! If I can tell you anything else, please contact me. Good luck.
Carol

Jake, I have not been in your situation, but I did find this information.
https://www.mayoclinic.org/tests-procedures/percutaneous-nephrolithotomy/about/pac-20385051
Here is some kidney stone information that i read in Mayo Newsfeed today. You will also see some related articles at the end.
https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-what-causes-kidney-stones/
What have your doctors got planned for you since the stone did not come out? My girlfriend told me something once about her doctor using a laser or something to break it up and she successfully passed it afterward.

@jakedduck1, I am so sorry, Leonard! I wondered where you were.

Several years ago sonograms and a CT scan showed some fairly large stones in my left kidney. I haven't experienced what you just did but I did have a large stone we all thought had passed because my symptoms resolved.

As a result, I made the decision not to follow up with another sonogram or scan due to financial constraints and since I had no further symptoms my docs went along with this.

But what we now think actually happened was that the stone moved enough to completely block my left kidney so when the pain came back we thought it was another stone.

Once again the symptoms resolved and I experienced only occasional discomfort.

Four years later after a bout of 'flu and pneumonia labs showed a fairly sudden drop in eGFR and elevated BUN and creatinine levels and an MRI showed a completely blocked and atrophied left kidney. That's how I got into Stage IV CKD, though diet and fluids and rest improved the situation to Stage III-b.

I'm telling you all this because at this point, for me lithotripsy won't change anything and my neph watches me closely to make sure the stone doesn't do anything mean to me. But for you, lithotripsy might help. IDK if you already had lithotripsy and it didn't work or if it hasn't been tried yet but I do know a second lithotripsy has helped my brother with his kidney stones and a friend as well, who had litho and stents and whose stones eventually were passed like @retiredteacher was talking about in her post. I also know that stones can disintegrate on their own then re-form, they can become several little ones, they can dissolve, or they can accrete.

Years ago my brother had major surgery to remove a stuck stone because lithotripsy didn't exist yet. Has your doctor suggested surgery? Or is your medical team planning to adopt a wait and see strategy n case the stone shrinks?

Whatever happens, whatever they and you decide, please know I'll be thinking of you and sending you positive vibes!