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Periodic Paralysis or Hypokalemic Periodic Paralysis

Brain & Nervous System | Last Active: Jul 6, 2020 | Replies (16)
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@hopeful33250

Hello @folkert

I was noticing your posts about Periodic Paralysis and I was just wondering how you are feeling these days? I would enjoy hearing how you are doing.

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Replies to "Hello @folkert I was noticing your posts about Periodic Paralysis and I was just wondering how..."
Folkert Veenstra | @folkert | Sep 26, 2018

Hello Teresa,

It goes really up and down. Without the medicine Keveyis (dichlorphenamide) I get very unstable and it is not a condition wherefor you can go to each hospital either. I know from many others their experiences that Mayo Clinics are for example not specialised enough to treat this condition.

In the USA there are for example specialists in Dallas, TX, Rochester, NY, Boston, MA and Baltimore, MD. The problem is if you don’t go to one of the top specialists, that it gets easy misdiagnosed.

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