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DiscussionPeriodic Paralysis or Hypokalemic Periodic Paralysis
Brain & Nervous System | Last Active: Jul 6, 2020 | Replies (16)Comment receiving replies
Replies to "Hi Amber, I'm so sorry to hear about your mom. I can't imagine this happening every..."
Thank you so much for replying. We are trying to figure out what triggers everything. Currently trying to find a new primary doctor now, since Mayo Clinic denied us. Her "episodes" or attacks were acting in a pattern but now they are coming more sporadic. She's never had her levels checked and I've heard the best time to do it is during the attack..but to find someone to follow through with it has been so hard. So many have diagnosed her with Conversion Disorder and then send her on her way. She has every single symptom of low potassium or Hypokpp.
Now ever since she's been diagnosed with Converison Disorder, no doctors seem to want to help or have anything to do with her. Pretty sure they would have other opinions if it was their loved one going through all of this. 🙁