Hello @ccunning -- welcome to Mayo Connect. I did a search of the discussions on Connect and could not find one with a post on Vogt-Koyanagi-Harada (VHK). I'm hoping your new discussion will be viewed by someone with similar health problems and they will join in the discussion. I did find some information by doing some searching that may be helpful if you have not already seen it:

NIH - Vogt-Koyanagi-Harada disease:
-- https://rarediseases.info.nih.gov/diseases/7862/vogt-koyanagi-harada-disease

Medscape.com - Vogt-Koyanagi-Harada Disease Treatment & Management:
-- https://reference.medscape.com/article/1229432-treatment

I used Google Scholar (https://scholar.google.com/) to find this research type article.
Novel treatment regimen of Vogt–Koyanagi–Harada disease with a reduced dose of corticosteroids combined with immunosuppressive agents:
-- https://www.tandfonline.com/doi/abs/10.1080/02713683.2017.1383444

Here are the rest of the search result links for the phrase "treatment of vogt koyanagi harada disease" - lots to choose from:
-- https://scholar.google.com/scholar?as_ylo=2018&q=treatment+of+vogt+koyanagi+harada+disease&hl=en&as_sdt=0,24

I like "One day at a time...". It's one of my favorites and a good outlook for those of us with rare or difficult health problems to manage.

Hoping you find some answers soon.

John