← Return to Long-term Antibiotics for Bronchiectasis & MAC

Discussion

Long-term Antibiotics for Bronchiectasis & MAC

MAC & Bronchiectasis | Last Active: Aug 14, 2020 | Replies (164)

Comment receiving replies
@margiebanks

@onana Olivia, sorry to hear about your chills last night, it can be frightening if this is the first time you experienced it. My experience is this - I had chills and hot flash episodes during the day AND at night while trying to sleep. I have heard that either of these could mean active OR worsening infection, but looking at your earlier posts, I think I understand that you've been on the big 3 for just a few months, not nearly enough time to kill off MAC. If the chills come and go, if it were me, I wouldnt go to Urgent Care, but would perhaps call my doc on Monday. I'm also so sorry to hear about your hubby's upcoming surgery and your worry about being there at the hospital for him or not. Once again, and plz correct me if I'm wrong, looking at your previous posts, you have had bronchiestas for years, NTM and lung cavities as well. I've learned thru this site that hospitals and especially ICU's are where theses nasty superbacteria lurk. You may want to BE THERE for your dear husband but he may want you to BE HERE after his surgery and when he comes home. Not trying to be dramatic or frightening, but depending on the stage of our disease(s) it's a deadly gamble for us when we choose to not consider the consequences of our actions. It's a tough call to make I know. My bronchiectisis and MAC/MAI is not at a threatening level yet and I did attend to my partner in ICU twice in the last 3 months. I was praying the whole time that I wouldn't get more sick. It really is a personal choice. I hope you are feeling better re your chills. Love and hugs, Margie

Jump to this post


Replies to "@onana Olivia, sorry to hear about your chills last night, it can be frightening if this..."

@margiebanks and @windwalker Thank you for your prompt, thoughtful and caring responses. You speak from experience and heart. I've tried to protect myself at the hospital, but I was the only one in the area who could be with my husband. I just didn't feel I could not be with him. I hope I don't have to pay a big price. The observation that my immune system seems to be struggling is right on. I know I'm exhausted and I know my lung condition reduces my resilience. It helps to hear your voices of wisdom. I pray for wisdom during a challenging time.