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Long-term Antibiotics for Bronchiectasis & MAC
MAC & Bronchiectasis | Last Active: Aug 14, 2020 | Replies (164)Comment receiving replies
Help! It's Saturday (of course) and I had chills last night for about an hour starting at bedtime. They subsided eventually and I was able to sleep. I've been on "the Big 3" since September 10. What do you think is going on? Could the chills be a symptom of lung infection from the MAC even though I'm on the meds? If so, what's the treatment? Should I bother to see an urgent care doc today? If so, what could they do for me? To make matters more complicated, my husband is in the hospital today because of a bad fall he took on Monday. He'll have surgery on Tuesday. Should I go to the hospital to see him if I feel well enough or should I stay home? Olivia
Replies to "Help! It's Saturday (of course) and I had chills last night for about an hour starting..."
@onana Hi Olivia. @margiebanks is right; hospitals can be potentially dangerous and in some cases, deadly for people with mac. Visiting him in a regular hospital room may be ok. AVOID the bathrooms in those rooms though. A study showed 95% test positive for lots of mac bacteria in them. I would avoid the pre-op room and the recovery or ICU. Those are the places the Super Bugs are caught. The fact that you are experiencing chills makes me feel like your immune system is struggling. You may want to purchase a N95 paper mask that allows good breathability to protect you if you go to visit him. Wishing him luck with his surgery and that you stay safe.
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@onana Olivia, sorry to hear about your chills last night, it can be frightening if this is the first time you experienced it. My experience is this - I had chills and hot flash episodes during the day AND at night while trying to sleep. I have heard that either of these could mean active OR worsening infection, but looking at your earlier posts, I think I understand that you've been on the big 3 for just a few months, not nearly enough time to kill off MAC. If the chills come and go, if it were me, I wouldnt go to Urgent Care, but would perhaps call my doc on Monday. I'm also so sorry to hear about your hubby's upcoming surgery and your worry about being there at the hospital for him or not. Once again, and plz correct me if I'm wrong, looking at your previous posts, you have had bronchiestas for years, NTM and lung cavities as well. I've learned thru this site that hospitals and especially ICU's are where theses nasty superbacteria lurk. You may want to BE THERE for your dear husband but he may want you to BE HERE after his surgery and when he comes home. Not trying to be dramatic or frightening, but depending on the stage of our disease(s) it's a deadly gamble for us when we choose to not consider the consequences of our actions. It's a tough call to make I know. My bronchiectisis and MAC/MAI is not at a threatening level yet and I did attend to my partner in ICU twice in the last 3 months. I was praying the whole time that I wouldn't get more sick. It really is a personal choice. I hope you are feeling better re your chills. Love and hugs, Margie