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← Return to Extreme fatigue with MAC
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MAC & Bronchiectasis | Last Active: Oct 29, 2022 | Replies (310)
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NIH is a federal government agency, whose charge is biomedical & public health research. In general, it sponsors studies done in other venues, or collects and analyzes data from studies, journals and reports. NIH is not (as far as I know) doing primary patient care, but through your physician you may be a participant in one of their studies. I look to NIH as a source for scientifically vetted information. Perhaps the previous poster was referring to "NJH," short for National Jewish Health, which is a big & well-respected provider of care for lung ailments, does a lot of research on the issues, and hosts an annual(?) conference on Bronchiectasis and related infections.
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I seem to be having some trouble navigating the bronchiectasis site lately, but wanted to share that I have been diagnosed for about three years and have not had MAC or NTM infections. I have had a couple illnesses that I became more sick than most people and required short antibiotic interventions. However, fatigue has been an issue that has overridden my life since this illness has taken hold of my life. It just happens to wax and wane in whatever nature it feels like taking......I concentrate on keeping everything as regular as I can-eating, sleeping, exercising (very lightly or I get exhausted).....and I try to keep doing my twice daily treatments as regular as possible.....I am grateful for my “new normal” and all of you as you give me so many wonderful ideas and support!