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← Return to Extreme fatigue with MAC
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I went to their web page and found it to be confusing. I didn’t see anything about treating MAC. I must have navigated wrong???. And I did not see how you can get to see someone.... somehow it looked to me like it was all research.
Replies to "I went to their web page and found it to be confusing. I didn’t see anything..."
NIH is a federal government agency, whose charge is biomedical & public health research. In general, it sponsors studies done in other venues, or collects and analyzes data from studies, journals and reports. NIH is not (as far as I know) doing primary patient care, but through your physician you may be a participant in one of their studies. I look to NIH as a source for scientifically vetted information. Perhaps the previous poster was referring to "NJH," short for National Jewish Health, which is a big & well-respected provider of care for lung ailments, does a lot of research on the issues, and hosts an annual(?) conference on Bronchiectasis and related infections.
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@sylvermoon8 I looked up NIH, and I guess they are strictly research. Not sure if they take patients in like Mayo does. They do have a number for patients wanting to be included in research. I received successful treatment at Mayo Clinic; but I know that they use my medical records for their research. Here is the number for patient intake at NIH. You can ask about treatment there, or ask for recommendations for nearby clinics that may be a spin-off from them. Here is the number: 1-800-411-1222