Jane,
Im so sorry to hear of all your going through. I can tell you of my experience with MAC that the exhaustion has had serious bouts to the point of barely wanting to or being able to move. My last bout of it I went off the big 3 as prescribed and it seemed to stop the cycle. I think only a pulmy with experience in MAC could tell you whether to get treated. I have a feeling its the meds that cause the fatigue .I could be wrong. ONly the truth is the meds are very strong and everyone has there ways of adapting/ or not, biologically that is. For me I think the meds cause the fatigue only if I get the flu and Im not on the meds I dont pick up again and usually its a sign that the bacteria are still lurking around. The other thing that helps with the fatigue is finding just the right balance of exercise and good solid rest are I think top priorities in steering clear of possible problematic side effects.
I hope you are under good care that you trust and keep up the work, its worth every moment.
Deborah