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Extreme fatigue with MAC

MAC & Bronchiectasis | Last Active: Oct 29, 2022 | Replies (310)

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@windwalker

@jweisser Hello Jan. I hadn't heard from you in awhile, so I am checking in on you. How are you doing these days? Did you ever get it figured out on what was going on with your legs? How is your energy level? Mine comes and goes, but per usual, by 3 in the afternoon; I hit a brick wall. All things considered, I have been painting the walls in my house, of course doing it piece-meal as I can do it. "A little bit here, and a little bit there'" LOL!

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Replies to "@jweisser Hello Jan. I hadn't heard from you in awhile, so I am checking in on..."

@windwalker Hi Terri - I laughed when I read your description "I hit a brick wall..." That is how I have always described the kind of fatigue I live with. At least mine usually waits until 4:00pm! The only coping strategy I have found is to quit and sit down - have you found anything that allows you to push through when necessary? I have tried naps, food, water, energy drinks...nothing seems to work. Earlier in this journey, I had some success in taking a break around one or two, then I could keep going a bit longer. That seems to have stopped working.

This is really interesting to learn about the “brick wall!” I seem to fight fatigue off and on each day, but almost every afternoon somewhere between 2-4 until about 7pm, it’s like my body is not interested in doing anything but the absolute minimum and I have to really push through when I have things I have to do! I really like my doctor, but he never told me this is a symptom of this illness