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Extreme fatigue with MAC

MAC & Bronchiectasis | Last Active: Oct 29, 2022 | Replies (310)

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@windwalker

@jweisser Ha! That is one thing I have noticed about most of us here on this site; we LOVE to garden! Be sure to wear gloves and mask when handling potting soil. It has billions of mac per teaspoon in it. I don't even handle it any more period.

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Replies to "@jweisser Ha! That is one thing I have noticed about most of us here on this..."

@terri M. I had a day yesterday with my pulmonologist, the nurse called on Thursday to say my sputum which I was never able to get a good specimen, was negative. I told her the fatigue has increased way more than ever before. She talked with the doctor, he said he wanted to see me the next day. He said my bronchiectasis does not appear to be bad enough to cause the fatigue I have. He looked back at old scans, back in 2015 and didn't see any difference in that time. He had the nurse take me walking and checked my oxygen, it dropped to 86 in just a few minutes, he put on oxygen and I walked more, oxygen slow coming back up. Sent me to the hospital for a chest ultra sound thinking it might be blood clot......it wasn't. Now he is going to do a heart valve echo next week. I suggested maybe I should lose some weight and get some exercise, he said that would probably help. Evidently I've had the bronchiectasis for a few years and he was most likely it will not progress anymore. I think he is leaning more toward heart valves instead of the bronchiectasis. I'm really lost since I'm new to the disease/condition. It must have been present in 2015 but no one ever mentioned it. So that's where I am, waiting for the heart scan/with bubbles?????? I still have no more energy. Thanks for listening. Janice