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MAC & Bronchiectasis | Last Active: Oct 29, 2022 | Replies (310)
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@windwalker ...thank you for your reply...makes a lot of sense....I have Bronchiectasis too so I understand I will be dealing with repeated bouts of MAC....and repeated exposure to drugs to kill it. Do you currently have positive MAC cultures? If not what drugs are you taking to treat the Bronchiectasis? And aren’t you concerned about the damage to our bodies with all of these ,one term antibiotics?
Replies to "@windwalker ...thank you for your reply...makes a lot of sense....I have Bronchiectasis too so I understand..."
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@hydrang3a Hi. I never did the Big 3 antibiotics. In 2013, I went on cipro and doxycycline for 10 days a month on alternating months. My mac tested neg after one year on it. I stayed on that regimen as a preventative measure for three yrs. I then caught pseudomonas in 2016 and got that treated w/tobramycin. That knocked it out after 30 days, plus, as a bonus knocked out the constant cough I had foe 10 yrs. I have been on the toby and cipro on alternating months ever since. I still test neg for mac and pseudo. That doesn't mean that I am cured, it just means there is no detectable amount. Though infection free: I still have bad fatigue that is due to having bronchiectasis.