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Extreme fatigue with MAC

MAC & Bronchiectasis | Last Active: Oct 29, 2022 | Replies (310)
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@jweisser

Thank you Terri, yes my CT Scan was recent, and the first I knew of this disease. My PA sent me to the pulmonologist for evaluation. He put me on a 10 day prednisone/antibiotic series. He also ordered a heart echo to check the valves in my heart. It just takes so long for each place to get to the testing. I don't have the echo until the 20th of this month. I assume he wants to check all things that might be causing the fatigue. I was impressed with the pulmonologist, he spent at least 45 minutes with me going over my chart and asking me questions. I guess that's why I forgot to ask if he thought this was progressive or will I stop here. The fatigue is what is my main problem right now. Once I have the echo, I may ask for another appointment with the pulmonologist. I think I need more answers. I have had fibromyalgia for years so this might be causing some issues right now.
I'm not sure I know how to maneuver the website well enough, but I will be spending more time figuring this out. thanks for your message. Janice

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Replies to "Thank you Terri, yes my CT Scan was recent, and the first I knew of this..."
tdrell | @tdrell | Dec 8, 2018

@jweisser ….sounds like your medical people are listening to you....ordering tests to narrow down the cause of fatigue….one additional and sorta easy test might be blood test...to rule out anemia...and also TSH...to see if your thyroid is hypoactive. tdrell

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Terri Martin, Volunteer Mentor | @windwalker | Dec 12, 2018

@jweisser Janice, your dr doesn't have to dig far to figure out the source of your fatigue. It is the mac & bronchiectasis. Fatigue is a major symptom of this disease. The only way a dr can tell if your lung disease is progressive; is to follow you and have a ct scan done every 2-5 yrs. Every patient is different. For some, this disease is no more than a minor nuisance, then others, may get progressively worse, while a very small percentage lose all immunity and get consumed by organisms. Bear in mind, mac is a very slow growing bacterium. You most likely won't go downhill fast from that alone.

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