Connect
← Return to Extreme fatigue with MAC
Discussion
Comment receiving replies
@jweisser Hi Janice. Have you had a recent CT Scan of your lungs? If not, ask for it to be done at your upcoming appointment. That is the best way to get a true picture of the health of your lungs. A good pulmonoogist office should have a saline nebulizing station to help you bring up sputem for testing. Mac and bronchiectasis disease is very fickle. For some people, it can progress, & be a very serious, even life-threatening disease. But, the majority of people will have it mildly and experience 'flare-ups' (bouts of lung infection). This is a disease that you will have to keep an eye on. Please read through our past posts and visit the Discussion Board on the group's home page. There is SO much info in our conversations. Are you able to navigate this site alright?
Replies to "@jweisser Hi Janice. Have you had a recent CT Scan of your lungs? If not, ask..."
I didn’t realize this is how the course of the illness goes. I find this site very helpful. Thank you for the info.
Connect
Thank you Terri, yes my CT Scan was recent, and the first I knew of this disease. My PA sent me to the pulmonologist for evaluation. He put me on a 10 day prednisone/antibiotic series. He also ordered a heart echo to check the valves in my heart. It just takes so long for each place to get to the testing. I don't have the echo until the 20th of this month. I assume he wants to check all things that might be causing the fatigue. I was impressed with the pulmonologist, he spent at least 45 minutes with me going over my chart and asking me questions. I guess that's why I forgot to ask if he thought this was progressive or will I stop here. The fatigue is what is my main problem right now. Once I have the echo, I may ask for another appointment with the pulmonologist. I think I need more answers. I have had fibromyalgia for years so this might be causing some issues right now.
I'm not sure I know how to maneuver the website well enough, but I will be spending more time figuring this out. thanks for your message. Janice