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Extreme fatigue with MAC

MAC & Bronchiectasis | Last Active: Oct 29, 2022 | Replies (310)

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@prelle1

I was so tired that I couldn’t walk across the room in 2008. Went on the 3 meds and seemed wonderful . Now the fatigue is back and I think I am going to try the meds again. I just don’t want to live with this quality of life. But then again I do want to live!!

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Replies to "I was so tired that I couldn’t walk across the room in 2008. Went on the..."

@prelle1 Hi. All doctors would cringe at what I am about to say, but here goes. The fatigue for me was so bad that I spent days upon days on the couch totally unable to get up. I was missing out a lot in life and social functions. So, I pleaded, believe me, I had to plead; to get a script for Adderall. Adderall is a stimulant (speed) prescribed for those with ADD, attention deficit disorder, which I also have. I told my local doctor that I felt like life wasn't worth living if I cannot get up and be a part of it. Thankfully, he understood and prescribed it. I take only a very small amount (.125 mg) a day out of a 20 mg tablet. That equates to a small crumb, but it is enough to help me to be functional again. As an added benefit, it helps give me the energy to move my flattened diaphragm and my oxygen levels have also improved. This is not a drug that can be safely used by everybody. It is not suited for those with high blood pressure, heart issues, or addictive personalities. Another thing I found useful to help with energy is 'ginsing with royal bee pollen'. This can be purchased at an asian market or online. You would need to run it by your dr to make sure it is ok for you to take. I feel like nobody but us with mac understands how dibilitating this relentless fatigue can be. Also, exercise is critical. The more you do, the better you will feel. Exercise can be just walking 20 mins a day (to start). I feel for you, I really do. I hope you can figure out a way to improve on getting going again. Mentally adjusting yourself can be helpful too. Just keep telling yourself that you are NOT going to be 'that' sick person any more. That is what really turned the tide for me. Others on this site have turned their health around, with determination; you can too. Please keep me posted on how you are doing.