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Extreme fatigue with MAC

MAC & Bronchiectasis | Last Active: Oct 29, 2022 | Replies (310)

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@macjane

Irene, I have no idea of what stage of sarcoidosis I have. Has this affected him physically and emotionally? Thanks, Jane

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Replies to "Irene, I have no idea of what stage of sarcoidosis I have. Has this affected him..."

Yes, hugely! Had we known then what we know now, I would have had him apply for disability. He retired in 2006 at age 60 because he could barely work three days a week. (Guidance counselor) We didn’t know there were stages to sarcoid either. It has affected everything for us. And I have MAC. Tis a lovely retirement- not! The odd thing is that our neighbor got sarcoid too and it affected different organ systems for him. He looked like he had AIDs. He (our neighbor) did receive psychological help with it. He was only in his forties. My husband’s quality of life is poor to say the least. It is sad. He says a lot more “wordy dirds” now because he is so frustrated. Breathing, coughing, eating, - all are difficult! And then he feels bad because he can’t help me. No fun going on- but every day above ground is still ok by me!