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← Return to Extreme fatigue with MAC
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Can you tell me if MAC is referred to as sarcoidosis. My records appear to be missing diagnosis from chart when I reacted to medicines. I was trying to get history from records in local records. Another doctor has MAC but can't find treatments (2) that ended up being stopped. I don't see MAC even after specific pulmonary test. I could be looking this up wrong.
Replies to "Can you tell me if MAC is referred to as sarcoidosis. My records appear to be..."
@macjane : MAC and sarcoid are two separate things although a person could have both. MAC is an OI (bacterial opportunistic infection) whereas sarcoid is an autoimmune disease. I only know know this because I have MAC, and my husband has stage 4 sarcoidosis. Irene5
@macjane Hello Jane. No, MAC and sarcoidosis is not the same thing. Mac is an infection caused by a mycobacterium (bacteria). Sarcoidosis, is thought to be an autoimmune disease that causes granular tumors anywhere in the body; typically in organs and lymph nodes. You mentioned NOTseeing mac indicated after your pulmonary test. That is because pulmonary tests test your lung function, not what is causing your issues. It sounds like you need to take more serious charge of your medical care. You may not even have mac, but only sarcoidosis. Ask for hard copies of all of your medical records for your own personal files. Do you know if your physician's practice offers a 'patient portal' where you can get online and read your medical records?
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I forgot to say thanks. I will be seeing someone next month in Rochester - long ride but sounds like Mayo is way to go and grateful to all of you people and the support group. Jane Brown