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Extreme fatigue with MAC

MAC & Bronchiectasis | Last Active: Oct 29, 2022 | Replies (310)

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@auntnanny

src3acs I'm very curious about the fatigue with this disease. I'm close to 78 and I don't know whether to blame fatigue on the disease or old age (or maybe both???) But..... regardless, it's there. I continue to do the best I can but I also continue to feel exhausted much of the time. To make it worse, I cannot sleep -- so I get up as tired as I go to bed. I don't sleep in the daytime and really not more than 5-6 hours at night and even that is broken up into about 2-hour segments. Anyone know what to recommend for a night's rest????

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Replies to "src3acs I'm very curious about the fatigue with this disease. I'm close to 78 and I..."

I'm also 78 years old and just recently diagnosed with bronchiectasis. I saw the pulmonologist this week, he showed me my lung scans and said there are not very many areas. I don't know how much is enough to cause problems. My main problem is fatigue and shortness of breath. He has me taking a short regiment of Prednisone and an antibiotic for 10 days. I'm supposed to take three different sputum samples but I can't get anything coughed up. I can feel it's in my lungs and I wheeze but nothing will cough up. Does this disease progress or will it stop with the few that I have now? I also the breast cancer, chemo and radiation in 2013. I don't know whether to declare myself not serious or keep ahead of this. I see the pulmonologist again it two weeks, I was so overwhelmed with questions from the doctor that I forgot to ask if it progresses . He has also ordered a heart valve echo cardiogram but that won't happen until the end of December. Janice

Hi ain’t nanny, I think we all feel fatigue and exhausted with Mac. And sleeping is always difficult for me too. But have you tried melatonin? It works for me most of the nights and then again sometimes it does not. But it’s pretty safe. I would wake up every morning at 4:am or 5:am and that’s it. I am 63 and my mind feels like 40 but my body feels like 80. So hang in there it will get better. Rita