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← Return to Extreme fatigue with MAC
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Thx so much I have not been treated for 9 years and have been going it alone. Now because of my”invalid status” I need to do something . As I said I went in the3 meds 9 years ago I had pneumonia 3 x and couldn’t walk across the room . I had to help the doc with writing the script and he never even followed me up on the meds or told me about Any Eye problems etc. I went it alone . I was so sick so fast and recovering from ca that I just didn’t have time to think the med regime might be more difficult than what I was facing. I had no follow up. Now I am tired all the time my symptoms came back after I stupid cruise to china. I was seen at MDanderson and treated there. I have an appointment with infectious disease in a week . Thank you so much , my name is Ellen
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Hi Ellen. You have been through quite a lot. I am sorry for that for you. Like you I thought perhaps MAC found me on one of my six trips to China to complete adoptions, especially since we all enjoy the same recycled air on those long flights. (For you a cruise). I really don’t think mine came from those trips, and I think we could drive ourselves crazy trying to figure that piece out. So don’t beat yourself up about taking a cruise. MAC was my retirement “gift.” I think we are all somehow susceptible to it based on a compromised immune system. Wishing you patience. Go easy on yourself. Good luck with your decision about the Big 3. My body doesn’t like them very much so I have been on a different regimen after three Big 3 attempts. This doesn’t cure but “seems” to keep the MAC from progressing so quickly in my lungs. Take care. Irene5