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← Return to Extreme fatigue with MAC
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@alleycatkate Hi Kathy, I would this journey with you for sure!! As I said on my post to Terri, I too have to check on my HMO, I guess Mayo would answer that. I’m wondering how do we start this. Do we call Mayo directly? I asked Terri for some guidance on how to begin. Kathy, thankyou so much for sharing your daily routine. I am walking every night and I too will begin adding exercise to it. I’ve started my vitamin D again and will look into the one you mentioned. I said to Terry @alleycatkate how wonderful it would be if we start this trip and met her at Mayo. BTW, yeah my gp said I’m not symptomatic but I’m confused because I have sob, mucus(its not clear at times) and fatigue, so aren’t those symptoms? So I’ll have to discuss with him what he meant by that at my next appt.... I too want to be well and be proactive. As you said many different opinions and approaches are a little overwhelming and this is new to me so in the end I hope I know what I am doing. Please stay in touch and let me know what your next step is. Terri if you read this thank you so much for always responding. Hugs Dee
Replies to "@alleycatkate Hi Kathy, I would this journey with you for sure!! As I said on my..."
@soflo...It would be wonderful to journey there (Mayo) together...but if we are not able to because of our HMO's...Please keep in mind we can go on this journey together anyway. It was great talking and I feel really good about us both going forward and fighting this. Be cool (as NY gals can be) and positive....and Call anytime you feel like chatting. Be well. Kate
@soflo, Hi Dee. Yes, those are symptoms, especially for bronchiectasis. It sounds like you are not full blown infected yet with colonizing mac, but it most likely is in your future. I think my dr. (Dr. Leventhal) would find you to be the perfect candidate for preventative antibiotics vs the 'Big 3'. He only likes to use preventative measures when infection is not fully involved and save the big guns (Big 3) for serious infections. His theory is that if you use the big guns now, you have nothing to fall back on when and if the infection gets really bad later. From what I have read, antibiotics may not work on a reoccurring infection because the mac gets resistant. Good journals to look up are those by Dr. Askasamit of Mayo Clinic (he is quite active in mac research) and Dr. Joseph Falkinham. The latter is a researcher of mac at Virginia Tech. By reading all that you can about this bacterium; you will better understand what you are dealing with. -Terri
@soflo Make sure you all get both of the pneumonia vaccines too.
@alleycatkate Hey friend, I'm so sorry it's been awhile since I've been on. So nice talking with you on the phone and yes if we can't go to the hospital together we will still go on this journey together. Thanks again. NY gals are cool ;)...I will be checking on which hospital to journey to. I will post when I know something so that others can get some info that may help them and lets talk soon.....xx Dee
@jkiemen Yes I will be getting #13 vaccine soon. Thks.... xx Dee
@soflo...Will call this weekend....so much to talk about! Haha...be cool...be well. xxoo Kate
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@soflo...I will private message you ...just starting to check on insurance.