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Extreme fatigue with MAC

MAC & Bronchiectasis | Last Active: Oct 29, 2022 | Replies (310)

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@soflo

@windwalker Hi Terri, thanks again. I may look into Dr. Levanthal. I too have a not so good HMO. Do you think that will be a problem for me to see him with an HMO? Maybe I connect with @alleycatkate Kathy and we can go to Mayo together. How nice would it be to meet you there as well. Something like this would be so much easier supporting one another. Terri would I just call mayo directly and ask for an appointment with him. Any direction with this would be greatly appreciated and hopefully Kathy will see this post and we can connect and move forward. Hugs Dee

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Replies to "@windwalker Hi Terri, thanks again. I may look into Dr. Levanthal. I too have a not..."

@soflo, Hi Dee, You would have to call and ask about your insurance. I have a feeling that since it is an HMO, your insurance company may not let you out of network. You can request of your HMO doctor to call your insurance company and explain that what you have is a rare orphan disease that needs a highly qualified specialist. Also, you may be able to get a CT, chest X-ray, etc. at your HMO's and transfer it down to Mayo. But, if you choose that route; get an ok from the Mayo dr first to see if that is acceptable. Mayo likes to do their own tests for complete accuracy. Being a non-profit, they charge way less than private practice doctors, and can work with you on a payment plan. See what you can work out. Will you please get back to me on what you find out so that I can help others with this issue? Thanks!

@windwalker I'm checking into all of this now. Hope for the best! I will keep you posted.