← Return to Extreme fatigue with MAC

Discussion

Extreme fatigue with MAC

MAC & Bronchiectasis | Last Active: Oct 29, 2022 | Replies (310)

Comment receiving replies
@alleycatkate

@windwalker If you are researching Dr's in S. Florida, I would really love a recommendation. W. Palm...Stuart, anywhere from Melbourne Beach going South if you come across a good one. . I am in Vero Beach and am in need of a new Dr. for MAC Thank you. I am seeing my GP this week to see if she will prescribe the nebulizer and 7% sodium Chloride so I can get going on that.

Jump to this post


Replies to "@windwalker If you are researching Dr's in S. Florida, I would really love a recommendation. W...."

@alleycatkate Hi I live in Palm Beach Gardens. I’m so happy to meet someone close by with something in common. I’m so happy to have found this support group and yes Terri is awesome. 🙂 Dee

@soflo ...Dee...I have been watching your current posts. I was recently diagnosed ...maybe a couple weeks ago. It is initially very confusing. I am just beginning to get a bit of a handle on this disease, thanks to this group. You are right...it feels good to have company. I am currently asymptomatic but am in need of a Dr as my present one just delivered the news on the phone and said he would see me next April. I hung up wondering what truck just ran me over. I think I may be very fortunate but not sure how long it can stay asymptomatic. I am glad you stopped your cocktail and see that you are also asymptomatic. On my initial apt with my pulmonoglogist, I asked about a nebulizer as I had seen so much on this post. He said no...no moisture. Frankly...I feel that you need to read as much as you can and make your own decisions. I will be nebulizing immediately...just as soon as I get over this darn cold and get out for a prescription from my GP. I have a trust issue with a lot of Dr's...and I believe it is warranted. I also usually just treat with herbs and natural remedies so the idea of that cocktail is appalling. So glad that you are in my neck of the woods...I am hoping to find a compassionate and good Dr. nearby. I wish you good health and good luck. Thanks for the hello...Kathy...

Any support groups in SE Michigan? Thanks