@soflo, I swear by my pulmonologist at the Mayo in Jacksonville. His name is Dr. Leventhal. If you need help finding one closer to home; let me know.

@windwalker Terri thankyou you for so much great info. Please let me know you think is the difference between nodules and the colonies. Which nebulizer should I get? I would like to start it right away. Jacksonville is about three hours away but I would travel if I had to but if you can, please let me know of a pulmonologist who specializes In MAC closer to me. I live in palm beach county. I am close to a Mayo and Cleveland clinic. I just hope I haven’t done more harm than good by stopping the big 3 but I’m so afraid of what they would do to my body. Anything else you recommend to begin other than the saline inhaler? Ugh I just dont know what to listen to anymore. Thanks again.

@windwalker888 Yes, thank you for all your posts and help on this forum

@auntnanny Jan, you are most welcome!

@soflo and @alleycatkate here is a specialist who treats mac in Vero Beach. I found him through http://www.ntminfo.org. Michele Maholtz, MD – Pulmonary
3725 12th Court, Suite A
Vero Beach, FL 32960
Tel 772-567-0081. There is one more on Vero Beach as well. A woman. I will be back with her info.

@soflo and @alleycatkate Here is one more specialist for treating mac near you. Laurie Welton, DO – Infectious Disease, Internal & Travel Medicine
3735 11th Circle, Suite 201
Vero Beach, FL 32960
Tel 772-299-7009

@windwalker ...The time, energy and caring you put into all of us is actually sort of mind boggling...and You probably know more than most Drs on this disease! I am thinking that if I do not have an issue with changing insurance plans that I will be heading for Leventhal come January. It makes the most sense to me. Dr Michele Mayholtz, I know her ..could be the fall back. Thank you, Terri. Kate

@alleycatkate You are welcome Kate. Thank you for the kudos. I have been researching this disease since 2005 in search of answers. My resource base has gotten a lot broader as doctors and researchers have been more aware of the growing prevelence of mac. Perhaps you can call Mayo's billing dept and ask them which insurance companies they have seen cover Mayo visits. Have you tried asking your insurance company for a waive in their policy if your physician would call in expressing that you have a rare orphan disease that requires a very good specialist? Or better yet, have your doctor call the insurance company and ask for a waiver.

so true...