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Extreme fatigue with MAC

MAC & Bronchiectasis | Last Active: Oct 29, 2022 | Replies (310)

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@src3acs

@tdrell ....hi there and thank you for your response. Lets see where to start. I had an echocardiogram on my heart almost a year ago. Did a sleep test over the summer...all normal. Just has blood work done 2 months ago all normal expect my Vit. D is low again and I do take supplements every day. No sputum cultures because a biopsy, then wedge resection, and bronchoscope all showed positive for MAC. Yearly CT show the MAC and bronchiectasis. Where the MAC came from I do not know. Starting at age 17 I had a spontaneous pneumothorax......again in my early 20's and I was a smoker at the time. Had surgery on both my lungs by the time I was 21. Had a few bouts with pleurisy, in my 20's and 30's and had pneumonia 3x in my 30's. Quit smoking 16+ years ago and I'm in my early 50's now. Spent some time in hot tubs in my 20's and I've been to Florida several times. Like you said there is the shower head and soil. Yes, it's very green where I live but I have never had allergies. Not to say I can't get them now. I have had shortness of breath for a year or so now and I use ProAir Respiclick when needed......the fatigue would come and go.....now it's here more often. By 2pm yesterday I wanted to crawl under my desk and take a nap. Today not as tired. I over sleep just about every morning! To be honest...sometimes I am just too tired to take a shower. Going for a pulmonology follow-up the 12th. Maybe I need a new pulm function test to see if there are any changes.

I will say I am happy to hear you caught the blockage in your heart before there was any damage.

I am so grateful for the responses I am getting from everyone. I will take a look around and see what other information I can find. Thank you!

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Replies to "@tdrell ....hi there and thank you for your response. Lets see where to start. I had..."

Src3acs.....wow you have had thorough work ups! I had had echocardiograms every 2 years that showed no evidence of the blockage of the coronary artery. Echos looks at the size , structure and movement of various parts of heart❤️Tdrell

My Vitamin D level is very low but nothing done to stabilize any of this. Does anyone have very irregular bowel movements? Or gross headaches in morning?

Good morning - try eating Activia. It works for me. I eat one every morning, and it helps with digestion. When I was on the Big 3, my stomach hurt all the time. Once I started eating Activia, my stomach problems went away. Good luck to you. Also, I don't suffer from headaches.....

@macjane You really need to get the VItamin D levels up with D3 or a shorter course or Ergocalciferol at high dose the maintain with D3. My infectious disease MD told me that is the best way to help your immune system. Not sure how low you are, but at least start taking something

Thank you so much. Cannot get doctor to respond. Told depression can be problem with low level of Vitamin D.

@macjane if you take some kind of medications you may want to check the secondary effects of them.  You may be able to solve your irregular bowel with probiotic. I have experience it in the pass.