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Extreme fatigue with MAC

MAC & Bronchiectasis | Last Active: Oct 29, 2022 | Replies (310)

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@tdrell

@src3acs....agree with you totally Re this group....amazing...supportive...knowledgeable ...empathetic...,the list goes on. When you have time ( and energy) try to review from the start. When you do, you will come across links to various taped workshops given in the past Re NTM and treatment etc.
Also do you know about the site “NTMinfo.org”....interesting. With lots of links.
Questions /comments that I have after reading your messages and that of others
- have you had sputum cultures done...how many and their results?
-have you ever had a sleep study done to see if you have sleep apnea?
- are blood studies normal...do you have anemia?
- you mentioned cardiology... have you had a stress test and nuclear scan.,,,I ask cause 3 years ago I had extreme fatigue....BUT my EKG AND Stress test were normal.....my sharp cardiologist ordered

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Replies to "@src3acs....agree with you totally Re this group....amazing...supportive...knowledgeable ...empathetic...,the list goes on. When you have time (..."

@src3acs....continuation...my iPad rebelled......my sharp cardiologist ordered a nuclear scan which showed an issue..cardiac catheterization showed that my right coronary artery was 99% blocked....stents put in.....heart damage avoided...half of energy returned but within a few months I had the cough appear.
-might you have allergies....If I recall from visiting our son......your area has lots of greens etc.
- where might you have caught the NTM? American Thoracic Society (ATS) has called various parts of country hot beds..
Florida,,,SE Wisconsin where I live...Oregon and Arizona I believe,,,,Hawaii.
Hot tubs....soil....shower heads...hot water heaters...on and on
Tdrell

What info for me. I got so much from your info.

Terri, I Sleep sometimes 45 minutes a night, if that. Does anyone get horrific nightmares that hold on 5 or 6 times a night?

@macjane...wondering if your lack of sleep and nightmares are a result of a form of sleep apnea/obstruction. Google it....My sleep apnea was discovered by chance when l had the bronchoscopy for my cough. I had a subsequent sleep study that show my breathing stopped 43-47 times an hour. Whereas I did not have the typical symptoms....waking with headache. feeling groggy all day etc....l did have vivid dreams...ended up jumping out of bed several times to avoid being gunned down (in nightmare) etc.
Have been on CPAP for over a year now.. do not have those dreams anymore except when mask not fit.ting face correctly.
There are other reasons for vivid dreams....some medications may cause that....google insomnia. tdrell