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src3acs (@src3acs)

Extreme fatigue with MAC

MAC & Bronchiectasis | Last Active: Sep 15, 2019 | Replies (310)

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@ling123

Hi @src3acs, I, too, was diagnosed with bronchiectasis and MAC over 3 years ago. I have not taken any drugs for MAC (there is no effective drugs for bronchiectasis). I don't know for sure if I'm still infected with MAC. But because my last chest X-ray indicated improvement in my lung conditions, I assume I'm no longer infected. Since there is no cure for bronchiectasis, the best we can do is to manage it in order to slow down the progression of the disease. I have not had any symptoms of shortness of breath or fatigue. Not even when I was first diagnosed. In fact I'm still physically very active, playing tennis 2-3 times a week without any of these problems. I'm not a doctor. But I suspect that the shortness of breath you are experiencing could cause the fatigue because of lack of oxygen in your blood. Is it possible that you might have other issues with your lungs besides bronchiectasis and MAC? Have your doctors looked into that possibility?

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Replies to "Hi @src3acs, I, too, was diagnosed with bronchiectasis and MAC over 3 years ago. I have..."

I am always exhausted and have a cough almost all the time.

@america…I had a constant cough for 5 years. It is exhausting and the antibiotics seemed to make me feel sicker. I understand where you are right now. Don't give up. This site has many suggestions.
I bought the book The Chronic Cough Enigma by Dr jamie Koufman. It has questions to point you to the right cause. Mine was acid reflux and I no longer have the constant cough, but I had to change my diet and sleep upright. The energy is returning, so it's worth it.

@egayle if you had acid reflux and you still have to sit to sleep you may want to consider taking Milk Thistle from Hübner liquid formula.  It is a life saver. Sometime our liver doesn’t digest all the bile and it stays in the stomach more than it should and

milk thistle help a lot.  My husband was the same way and he is sleeping normal now and he takes it when need it now.  I make sure he takes one or two table spoon a week.  He lives normally now! Check the website for Hübner. Have a lovely day! Nick