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@merpreb

@elsa- Good morning- I agree, we have to be advocates for ourselves and that might (usually) includes doing research on our medicines and illnesses! I am emphatic about this because there has been such an amazing amount of new information about both of them, new discoveries all the time that it would be impossible for anyone to be up to date and know it all.

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Replies to "@elsa- Good morning- I agree, we have to be advocates for ourselves and that might (usually)..."

@merpreb I agree about advocating for ourselves. My experience has been that the medical realm I know does not want to hear of anything that I have read about and questions about treatment. I am not the strong assertive type and when a doctor blows a fuse when asked why about a treatment-pretty much keeps me from asking “why”. Are some so set in their ways they are threatened by being asked “why”. Maybe I go about it wrong. I know all doctors are not like what I have experienced. Hard to find a primary. I no longer mention pain or any new symptoms. Bloodwork and heart are normal so I am healthy. Just thinking on a public forum. There is a way. Still working on it. I have learned to not mention pain. They just seem so impatient as to what it once was. The pain specialist I see is vey kind and listens. I actually talk to him and not the lid of a laptop.