@lisamarie81 Hi, Lisa. We are regularly chewed out when we try to help the diagnosis along, even when the docs don't have a guess. So I won't try to diagnose, but to tell you that you have almost the identical package of symptoms/signs I have. And same with Techi and Lisabeans. All of the autoimmune diseases in the misfolded protein junkyard can be very difficult to diagnose, even if you get a SERUM FreeLite(c) assay and proteinuria assay. And when you don't have a doc who will listen, it is plain hell. So I suggest a couple things. First, get info on Amyloidosis, particularly hereditary Transthyretin wild type. Go on the Alnylam.com and Mayo sites and NIH.Gov and look at their information. Next time a doc refuses to follow through, simply ask for the doc's full name so you can sue for malpractice. Third, look at my full story at https://bit.Ly/1w7j4j8 in the Amyloidosis folder. Finally, look on the Mayo site for Amyloidosis support groups. They are all over the country. These groups are the best source of finding helpful doctors. Some doctors who will help are rheumatologists, others are cardiologists, others oncologists or hematologists. Most important, keep going until you find one who will help you. It has taken me several decades. Also check with the alumni section of your favorite medical schools...Mayo, Sloan Kettering, Stanford, etc.