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Any Optic Nerve Meningioma Patients Who've Had Surgery?

Brain Tumor | Last Active: May 13 6:52pm | Replies (110)
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@pegorr

I was not diagnosed as a teenager but looking back I believe I probably had the tumors then, a slight eye bulge, etc. but didn't get diagnosed until 2010 at age 60. When I look back on my pictures one eye is definitely a bit different than the other. I am sorry to hear that you are going through this, but we're here for you. Wishing you all the best. Peg

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jshdma | @jshdma | Sep 20, 2019

@andavis1189 Not knowing another person with a particular medical condition seems very hard to take. I feel the same way. In my case it's "burning mouth syndrome" (or something like that). It's daily torture, no real treatment, numerous docs know nothing about it, and those that do offer no cure and barely any relief. This topic comes up on Mayo discussion line, but I have never met or heard personally about anyone with it.

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