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Any Optic Nerve Meningioma Patients Who've Had Surgery?
Brain Tumor | Last Active: Aug 14, 2023 | Replies (105)Comment receiving replies
@mrector and @kelleroberts Wow, as much as it pains us to learn that there are others dealing with this, it almost is a relief too. Just knowing that there are others who understand; especially when no one else does. But, how could they, right?
I totally get the pain after TRYING to focus on something. Oh my goodness, especially after vision testing, it hurts so badly the rest of the day. Bright light, reading, using electronics, you name it, I pay in the end. 🙁 I've tried eye patches, a bandana, etc. It would help some to keep it covered, but the fabrics irritate my eye, argh! So, now I just close my left eye when I'm doing things or it is bothering me.
I am at the point where I just want them to take the dang thing out. I even asked my optometrist if she could find me a "black out" contact for my left eye. Unfortunately, they cost around $200! 😲
Replies to "@mrector and @kelleroberts Wow, as much as it pains us to learn that there are others..."
My sister works for my ophthalmologist.. I ask all the time if they could just pop my eye out and be done with it..I also have tried cover my eye, but sometimes that is worse. I have also rodeo'd my entire life, barrel racing, I am struggling with that now also as I have zero depth perception. have any of you done the radiation treatments? That is what they are thinking of next. My next appt is the end of June, so I guess we will see. Thank you for sharing with me. It does help knowing that others understand what I am going through.
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I close my left eye too quite often. My neurosurgeon stopped my surgery before I was blind that day, but I almost think it would have been better to be completely blind all the sudden instead of losing vision slowly.