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Any Optic Nerve Meningioma Patients Who've Had Surgery?

Brain Tumor | Last Active: May 13 6:52pm | Replies (110)

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@kelleroberts

Im so glad I found this site.. I haven't had anyone around here that has had the problems that I do. They just dont understand. After trying to work this last week, Im a nail technician, I almost decided that there isn't anyway to keep doing that. After a day of trying to see where to place the brush, my headaches are horrible. So disappointed that the removal of this didn't help with my vision and somedays I think it is getting worse. I to am trying to stay positive and I know its only been a short time. But, this is really starting to work on me. Thanks for listening/reading.

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Replies to "Im so glad I found this site.. I haven't had anyone around here that has had..."

I'm also having hand tremors since the surgery, so with those combined with vision loss there is no way I can do nails. It's so frustrating. Does the dr say if your vision will improve? My neurosurgeon says I will be completely blind in my left eye eventually. The remaining part of my tumor is still wrapped around my optic nerve and there is no way to remove it. He tried to remove as much of the tumor during surgery but the risks were to great to continue. I have brain MRI's every 6 months to monitor it.

@mrector and @kelleroberts Wow, as much as it pains us to learn that there are others dealing with this, it almost is a relief too. Just knowing that there are others who understand; especially when no one else does. But, how could they, right?

I totally get the pain after TRYING to focus on something. Oh my goodness, especially after vision testing, it hurts so badly the rest of the day. Bright light, reading, using electronics, you name it, I pay in the end. 🙁 I've tried eye patches, a bandana, etc. It would help some to keep it covered, but the fabrics irritate my eye, argh! So, now I just close my left eye when I'm doing things or it is bothering me.

I am at the point where I just want them to take the dang thing out. I even asked my optometrist if she could find me a "black out" contact for my left eye. Unfortunately, they cost around $200! 😲