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Any Optic Nerve Meningioma Patients Who've Had Surgery?

Brain Tumor | Last Active: May 13 6:52pm | Replies (110)
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@mrector

I had my surgery in Columbia, South Carolina and had a great team of doctors. The vision loss is my main obstacle. I also have trouble trying to hold conversation. It's like I know what I want to say but it doesn't come out right. I have to concentrate on trying to say what I'm thinking. I still have some dizziness but not as bad as it was. I guess I just don't feel like I'm the person I used to be if that makes sense.

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lynzee | @lynzee | May 9, 2019

I 1,000% understand all that too!!! I was so frustrated one day that I wrote out everything I was experiencing (and shared it with my family and doctors) because when having an in the moment conversation, it's like my brain would freeze up. I would know what I wanted to say was in there but couldn't get the words straight.

My Oncologist has had me on steroids since radiation and my neurosurgeon had me on them for 2 months-ish after surgery; thankfully, we are FINALLY down to 2 MG every 2 days. To add to everything else, I have also put on about 40 pounds... The mix of the inability to be physically active and those meds, really, didn't do me ANY favors...

I tried so hard to work. So hard that I literally was making myself sick because I wasn't listening to my body saying "REST!!!" I've been a hard worker for the almost 38 years I've been on this Earth... it took my management telling me to "STOP WORKING AND GET HEALTHY!" They, of course, couldn't hold my position forever; We just recently decided it was time to end on good terms. :'( I LOVED my job but it involved all the skills the "Old Lindsey" was a pro at. This "New Lindsey", well, apparently, she's also part of the "New Normal."

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