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Any Optic Nerve Meningioma Patients Who've Had Surgery?
Brain Tumor | Last Active: May 13 6:52pm | Replies (110)Comment receiving replies
@mrector It sounds like we were hospitalized around the same time! I was in from July 31-August 6. As I said in my message to Kelle; My surgery was done by a team of neurosurgeons at Tuft's in Massachusetts. Every day I was there the entire team would come in to check in on me; as this condition, as I'm sure you're aware, is so rarely seen.
I totally get the way you feel... I just spoke with my Long Term Disability Insurance company's attorney to start the process of applying for SSI....I know that supposedly the universe doesn't give you more than you can handle... But I tell you what, my fingertips are about worn out and I think I'm starting to lose my grip. 😭
What symptoms are you having at this point? I'd like to compare, just out of curiosity. 🤔
Replies to "@mrector It sounds like we were hospitalized around the same time! I was in from July..."
Im so glad I found this site.. I haven't had anyone around here that has had the problems that I do. They just dont understand. After trying to work this last week, Im a nail technician, I almost decided that there isn't anyway to keep doing that. After a day of trying to see where to place the brush, my headaches are horrible. So disappointed that the removal of this didn't help with my vision and somedays I think it is getting worse. I to am trying to stay positive and I know its only been a short time. But, this is really starting to work on me. Thanks for listening/reading.
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I had my surgery in Columbia, South Carolina and had a great team of doctors. The vision loss is my main obstacle. I also have trouble trying to hold conversation. It's like I know what I want to say but it doesn't come out right. I have to concentrate on trying to say what I'm thinking. I still have some dizziness but not as bad as it was. I guess I just don't feel like I'm the person I used to be if that makes sense.