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Any Optic Nerve Meningioma Patients Who've Had Surgery?

Brain Tumor | Last Active: May 13 6:52pm | Replies (110)
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@kelleroberts

This was my first operation. My surgeon said he wouldn't go back in again. My surgery was done in Murray UT. Now we are planning on radiation that will last 6 weeks, 5 days a week. I am having MRI's every 3 months.This has been a crazy journey. Im sad that my vision didn't change with this surgery and am doing all I can to stay positive..

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Replies to "This was my first operation. My surgeon said he wouldn't go back in again. My surgery..."
lynzee | @lynzee | May 9, 2019

@kelleroberts My surgery was done by a team of neurosurgeons at Tuft's in Massachusetts. Every day I was there the entire team would come in to check in on me; as this condition, as I'm sure you're aware, is so rarely seen.

I hate to say this; I had high hopes and tried to stay as positive as possible throughout this journey too. However, these past couple of months I have struggled. None of my doctors have any insight to provide besides saying we're essentially in a "holding pattern". I swear, I am going to write a bio and name it "Holding Pattern; The New Normal."

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