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Any Optic Nerve Meningioma Patients Who've Had Surgery?

Brain Tumor | Last Active: May 13 6:52pm | Replies (110)
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@mrector

I know how you feel. My tumor is wrapped around my left optic nerve also. I have lost most vision in my left eye and eventually will be blind in that eye. I had 85% of the tumor removed August 2018. Dr is continuing to monitor the remaining tumor. I get so frustrated with how this has changed my life completely, don't get me wrong, I am thankful I am still here but I feel worthless now. I no longer can work and don't understand why God didn't go ahead and take me. I'm so sorry you are going through this too. Let me know if I can help in any way. I'm here to listen.
Mandy Rector

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Replies to "I know how you feel. My tumor is wrapped around my left optic nerve also. I..."
lynzee | @lynzee | May 9, 2019

@mrector It sounds like we were hospitalized around the same time! I was in from July 31-August 6. As I said in my message to Kelle; My surgery was done by a team of neurosurgeons at Tuft's in Massachusetts. Every day I was there the entire team would come in to check in on me; as this condition, as I'm sure you're aware, is so rarely seen.

I totally get the way you feel... I just spoke with my Long Term Disability Insurance company's attorney to start the process of applying for SSI....I know that supposedly the universe doesn't give you more than you can handle... But I tell you what, my fingertips are about worn out and I think I'm starting to lose my grip. 😭

What symptoms are you having at this point? I'd like to compare, just out of curiosity. 🤔

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