I was diagnosed last June; left eye has a meningioma wrapped around the optic nerve causing vision loss, color blindness, pain, and pressure.

The tumor spread into my brain near the sinuses as well. I had surgery the day before my birthday; July 31, 2018. They were only able to remove the part that had spread into my brain. The neurosurgeon didn't dare to remove any from the eye once they realized how wrapped up it was in the blood vessels. He was nervous it would blind me for sure and didn't want to take the chance.

I did 6 weeks of radiation. Last treatment was New Year's Eve. My oncologist and the rest of my medical team is disappointed that things have not only not improved, they have become worse. Testing shows the nerve is thinning and my vision continues to deteriorate.

I have been strong throughout this journey but that strength is waning... I have been monitoring this feed for a while but didn't feel up to posting; at this point, however, I could really use support from others that understand what I'm going through.

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