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Any Optic Nerve Meningioma Patients Who've Had Surgery?

Brain Tumor | Last Active: May 13 6:52pm | Replies (110)
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@paulaakelley70

I posted this to another person in this group. I’m not sure how this works. I’m new to the group.

Hello. My name is Paula. I had proton radiation in 2009. I have a Optic Nerve Meningioma. I have had 3 brain surgeries and 128 proton beam radiation treatments. If you would like to talk. I would love talk. I would love to share my experiences. I have been fighting for my life sine 1999.
God bless.
Paula

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Replies to "I posted this to another person in this group. I’m not sure how this works. I’m..."
Colleen Young, Connect Director | @colleenyoung | Jan 6, 2019

Welcome @paulaakelley70. Thank you for joining the group about Optic Nerve Meningioma to share your experiences, especially with surgery and proton radiation, but also living with such a diagnosis. I'm confident that @kmart @pranas @07ram @israel53 @tammywyatt and others will appreciate your insights.

Paula, why did you have to have 3 surgeries? How are you doing today? What vision issues do you manage?

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