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Any Optic Nerve Meningioma Patients Who've Had Surgery?
Brain Tumor | Last Active: May 13 6:52pm | Replies (110)Comment receiving replies
Hi Pranas,
How large is your tumor? Are you having any side effects from it. My sister had surgery 15 years ago for a frontal lobe tumor. She did lose her sense of smell but vision is fine. She recently found out that she has a New meningioma very close to her optic nerve. After consultations with several NS she decided to fly to Rochester
Mayo Clinic where she had Gamma Knife Radiation on that meningioma and 2 other new ones. She will go back in April for another MRI to see if they have shrunk in size. Hopefully you will hear back from others on this wonderful site who can be of some help to you and share surgical experiences. Best of Luck and sending well wishes your way. Nancy
Replies to "Hi Pranas, How large is your tumor? Are you having any side effects from it. My..."
My meningioma is 10x7x7 mm pressing on the optic nerve. I have "tunnel" vision in this eye with no peripheral field vision. My right eye takes over. If I need to see on my left side I have to turn my head to the left. I am having surgery in Tucson next month. I am so overwhelmed. My vision will not get better - it is just to preserve what I have now.
The location of my left optic nerve meningioma is pressing on my nerve. There is nothing they can do for gamma knife or radiation therapy because it will fry the left optic nerve. The size is 10x7x7 mm. It is small, but is affecting my left eye vision. I see tunnel vision in this eye and do not see the peripheral fields. I am having surgery in Tucson with a neuro surgeon next month. I am so overwhelemed. It will not make the sight better only preserve as he cannot go close to the optic nerve because if disturbed, I will go blind in the eye.
I wish you all the best and hope it will come out better than expected. Pls can you share who is your surgeon...
Kurt Schroeder at Center of NeuroSciences on River Road in Tucson AZ
Thank you very much, his name sounds so German...by the way I'm German!!!
Hello. My name is Paula. I had proton radiation in 2009. I have a Optic Nerve Meningioma. I have had 3 brain surgeries and 128 proton beam radiation treatments. If you would like to talk. I would love talk. I would love to share my experiences. I have been fighting for my life sine 1999.
God bless.
Paula
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Nancy, my tumor is presently 3cm x 4,4cm and I have to do something. I got operated first time back in October 2012 but since then it has grown 5mm. I do have seizures but take Keppra. Otherwise, I have no side effects...I’m more sensitive to noise or bright lights. I just wish it would stay like this...they informed me at my next operation speech and vision is in danger...