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Any Optic Nerve Meningioma Patients Who've Had Surgery?

Brain Tumor | Last Active: May 13 6:52pm | Replies (110)

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@pranas

My tumor is growing around my left optical nerve. I do need a surgery but some NS warned me that I might not be able to keep my vision. Where did you have your operation?

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Replies to "My tumor is growing around my left optical nerve. I do need a surgery but some..."

My present meningioma is behind my right eye next to my optic nerve. It is a remnant from my original atypical meningioma that was removed on 4/29/2015, by neurosurgeon matthew hummel in austin, tx. He didnt say it but I think he left the remnant because it was too close to my optic nerve. I had radiation with cyberknife in jan. 2016. Had several mris and it came back again on nov 2017, had cyberknife again in jan 2018. My vision is still good, have 20/20. Hope this helps.
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My meningioma is pressing on left optic nerve. My neurosurgeon is in Tucson AZ and he indicated that he can only remove piece by piece very delicately the bulk of the tumor so it does not cause any more pressure to the nerve. He will also take away or shave some bone near the optic nerve to give "space" for tumor not to continue to press on optic nerve. He cannot remove all because it is right on the optic nerve (left) and if the optic nerve is disturbed it will leave me blind in the eye. I am only getting the surgery to preserve the eyesight I do have which is tunnel vision and cannot see peripheral fields. Wish me luck!

I live in Tucson. My tumor is also pressing on my left optic nerve. I have not had surgery yet. Scheduled for next month in March in Tucson with a neuro surgeon who has done these before. He said all his surgeries are successes, but there is always a risk because of this type of surgery that it might also leave me blind. He cannot "remove" entire tumor, but will remove the bulk of it and give me time to preserve my eyesight. Because there is already damage to the optic nerve, eyesight does not get better, it will only preserve what I have now. Pray for me!

Mine also was growing around mine. Therefore they were unable to remove all of mine. The only issue I have 8 years later, is dry eye. I do where trifocals.

I had one surrounding my left optic nerve. I was unable to keep the vision as they had to remove the entire optic nerve.

@pranas Last year, I had a meningioma sitting on my left optic nerve near where the nerves for both eyes intersect. I opted to get the surgery (in Sacramento) so the meningioma did not grow onto my right optic nerve. At the time of surgery, I was seeing through the middle of a black circle with little to no peripheral vision. After surgery, the black circle was gone, but it is as if someone coated my eye with vasoline. I have light perception and can make out some shapes, but otherwise I am legally blind in that eye. I am awaiting my 6 month MRI for the NS decision on whether or not I will need radiation. Even with this outcome, I would do it again. Hope this helps...