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Any Optic Nerve Meningioma Patients Who've Had Surgery?
Brain Tumor | Last Active: May 13 6:52pm | Replies (110)Comment receiving replies
Alpineir, I'm tagging fellow members who have experience with meningiomas involving the optic nerve. I hope @pranas @nancye3 @pegorr @irishel @07ram and @barbarabx will join this discussion to share their experience with treatment options, in particular surgery.
In the meantime, @alpineir can you tell us a bit more about your situation? What surgical options are available to you? What questions would you like to ask?
Replies to "Alpineir, I'm tagging fellow members who have experience with meningiomas involving the optic nerve. I hope..."
Thinking of you and praying for best possible outcome!!
My wife underwent cataract surgery in Apr 2018. She continued to have cloudy vision, was told to have a brain scan (MRI) and the result was that she has a 1.3 cm x 1.3 cm x 1.5 cm meningioma that is pressing against the optic nerve. That is why she has cloudy vision and has failed 3 vision tests (lost peripheral vision). This was all confirmed by a nueroopthalmologists and she now scheduled to see a neurosurgeon for options regarding treatment. Like you, I don't know exactly how my wife and I should proceed.
Hi @israel53
I thought I'd check in to see how you and your wife are doing? What course of treatment did you, she and her care team decide to take?
Hi Nancy. Sorry for not replying sooner. It's been a worldwind. From Orlando to Baskum Palmer Institute, Miami and now to Mayo Jacksonville. Still not sure what to do. Some doctors recommend drug therapy while others recommend fractionated radiation and yet others say surgery is the best option. Do you have any ideas? Thanks for remembering us.
My neurosurgeon wants to perform a craniotomy for optic nerve menangioma. I’m trying to find out if there’s a less invasive option.
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No other options per neuro surgeon in Tucson AZ. He has done 1 a year in his 32 years of being neuro surgeon. In the past year alone, he has done 4. I asked why not a clinical study on why there are 4 this past year alone. He said not enough for a study and the numbers are considered not huge. It is rare to have an optic nerve meningioma, but it does occur. Mine is pressing on the left optic nerve near the chiasm area. It is creating my vision to be distorted (tunnel vision) and my peripheral fields are affected. I had cataract surgery in September then YAG because a piece of "protein" was left behind the lens. But, I still could not see well. Finally went to neuro opthamologist (only one in Tucson BTW) and he sent me for MRI. MRI revealed a 10x7x7 mm meningioma. I saw surgeon and because of location, surgery is the only option. Cannot do radiation therapy or stereotactic radiation surgery or gamma knife either. I feel so overwhelmed. My only recourse is surgery which is scheduled next month.