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Pericarditis/Constrictive Pericarditis
Heart & Blood Health | Last Active: Oct 3, 2021 | Replies (43)Comment receiving replies
Hi I will beging with a little back story.
At age 15 i was told i had a collapsed lung partial 60%. At which time it came back on its own over a couple days 2 months later i thought i had the same issue. However i was then told i had pericarditis. At ehich time i was given a special stereriod to treat it. By age 18 nearly 3 years later pericarditis again was given antibiotics and steriods to treat it. Year later this return same treatement by 22 nothing for nearly 3 years this then cam back same treatemebt however tha pain stayed daily after this between 22 and 27 i have had confirmed pericarditis a number of 6 times.
The pain never goes away just managable. I have been through ecos as well as heart tracing bo damages ekgs non stop as well. I am turning 28 doon i am dizzy thirsty all yhe time but everything keeps coming back normal. Does anyone know what to think or qhat to do ? My blood type is ab and i was reading heart disease is higher i this blood type could it be something simple causing such a bad reoccurence of this awful issue ?
P.s. apologize for any typos typing on old broken phone
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I am so sorry you have to be going through this. It really is awful! Chronic chest pain is not easy to cope with, and especially when the reason you have pericarditis cannot be determined. I also have recurrent pericarditis, which progressed in frequency so for 3ish years every time I have stopped treatment the chest pain would return. I spent hours and hours searching for "why" this is happening to me, only to not find much...idiopathic pericarditis just doesn't have a reason. I feel fortunate I have a cardiologist who has a focus in pericardial disease who worked with me to customize a plan based on my history of recurrence, moving from being reactive when I have symptoms to proactive to prevent them. I now stay on colchicine since that seems to work well for me to control recurrence, and have a plan for next steps should the current management stop working and I flare again. Good luck finding something that works for you!