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@nobletype

Hi - My cousin has recently been diagnosed with Felty's Syndrome after years of suffering and searching for answers for her symptoms. She most recently was admitted into ICU in Tennessee for an unknown infection, high fevers of unknown origin, has struggled with rheumatoid disease for years, multiple bouts of pneumonia, an enlarged spleen and elevated white count. As Felty's Syndrome is a rare autoimmune disorder, we have been unsuccessful in our search for someone who has also been diagnosed who might be able to share anything that may help with her symptoms, coping, advise, etc. She lives in a very, VERY rural area of Tennessee and referrals and extended healthcare in the area is limited. I am currently a patient of Mayo in the gastroenterology department and was hoping I might be able to reach someone through this group. Thank you for your help or insight.

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Replies to "Hi - My cousin has recently been diagnosed with Felty's Syndrome after years of suffering and..."

Hello @nobletype, I did a search of Connect and only found one other discussion on Felty's Syndrome. I'm tagging @kanaazpereira who may also have some suggestions. Here is a link to the discussion:

Groups > Autoimmune Diseases > Rheumatoid Arthritis, Felty's Syndrome and prednisone
-- https://connect.mayoclinic.org/discussion/alzhiemers/

I also found some other information on Felty's Syndrome.

NIH - Felty's syndrome
-- https://rarediseases.info.nih.gov/diseases/8234/feltys-syndrome

National Organization for Rare Disorders - Felty Syndrome
-- https://rarediseases.org/rare-diseases/felty-syndrome/

Also, there is another discussion on Rheumatoid arthritis questions that you might want to post any question you might have here:
-- https://connect.mayoclinic.org/discussion/rheumatoid-arthritis-questions/

@nobletype, has your cousin's doctors offered any treatment plan?

John